Sunday 31 May 2015

Chronic Illness Community

As i write this it's 2am, a mixture of pain / sickness are keeping me awake and my mind is racing at about a million miles a minute.

One thing I've been thinking a lot about lately is the chronic illness community. Lately its really grown in popularity, I'm not saying illness is a popular thing or a trend, but more and more people are talking about and sharing their experiences.

Of course as someone who blogs and vlogs about their life being ill all the time, I can hardly say it's awful, that it's a taboo subject no one should ever mention, surely that'd put me in line for hypocrite of the year award. However I do think people need to be a little bit more aware of what they're posting or saying.

Log on to instagram and the community of spoonies (a term often used by the chronically ill) is massive, hundreds of thousands strong, all posting pictures, detailing their day, hospital stays, asking advice , updates on treatment etc. Of course others then double tap, comment sending well wishes, answering questions etc. I do it myself, so of course I understand how great it feels, to be part of this community that understands what your going through, what your life is like. In my experience illness can make you feel alone. On instagram your'e never alone. No matter what time of day it is you're never alone.

But these communities also have their downsides. People seem to forget that everything we put on the internet is an edited version of whats real. You only see what I want you to see. I may upload a picture of myself happy hanging out with family, you don't see pictures of the painkillers I had to take before hand, that I slept for 2 days before and 2 days after, or that I had a seizure and wet myself an hour later the picture was taken.

I get alot of messages asking about medications, people comparing themselves and their own situation to mine. I see the same on many others posts "how come your dr prescribes that? Mine won't give it to me"

I also encounter a few people who seem to be turning the community into a competition of who's sicker. That's not what this community is about.

oh and blatant cyber bullying.

Try to remember the following and the chronic illness community will be a much better place.

  • Don't ask for or give advice on medications / treatments, what works for you could be dangerous to someone else. Encourage speaking to a medical professional
  • Dont compare yourself to others
  • Be careful taking pics of meds or prescriptions, your address or personal info, your just asking for your ID or meds to be stolen
  • Don't have anything nice to say, don't bother
  • illness isn't a competition, we're all in a different race
  • If you think you're having a medical emergency call an ambulance don't wait around for social media advice. Not only is that stupid, it makes others feel guilty and helpless.
  • Try to take everything with a pinch of salt, I know we become attached to internet friends, but everything we see and read is only part of a story. Other peoples problems are NOT your problem.
Sorry if this post offends or upsets anyone, that's not my intention. As a whole I love the spoonie community and it's been a huge part of my life. 

Spoonie Communities exist on every social media platform and across the internet. I was using instagram as an example.

If you want to follow me on Instagram Click here and say Hi

Lots of love

Charlotte says what?

Friday 29 May 2015

Catch Up

hey lovely,

I've been trying to get my videos on a more regular upload can check them out and subscribe at

Or check out my most popular recent videos below

Lots of love

Charlotte says what?

Wednesday 20 May 2015

Red Lips

A standard beauty staple for most females out there. The perfect red lip can be somewhat difficult to master, well at least for me it was, but once you've found the shade for you it's hard not to want to wear it 24/7.

I've always been more of a pink lips kinda gal, mainly because being pale enough to be caspers wife ( as in the friendly ghost ) has meant I could never quite find the right red. Pinks are easier to pull off even if it's not 100% right you. The wrong red in my opinion can look a bit cheap, just a makeup disaster.

But hey at last I've found my perfect match.

Kate Moss for Rinmel : 01 Red Nose Red

MUA Intense Colour Liner : Red Drama

I'm so late discovering the red nose lipstick. A super cute packaged limited edition lippy bought out to raise funds for Comic Relief / Red Nose Day. ( back in March ) I assume / hope the colour is a part of the permenant Kate Moss for Rimmel Collection.

I'm not sure why I've not tried Rimmel Lipsticks earlier. I kinda picked this up on a whim to be honest but OMG it's been love from first application. Super long lasting and moisturising, it's comfortable to wear and the colour pay off is amazing. Nice and pigmented.

I've been pairing it over a lip liner for maximum colour and to avoid bleeding and smudging. The MUA liner Red Drama is rich and creamy, applies smoothly and wait for it.... Is only £1 !!
(Built in sharpener too)

So I've 100 % been converted to reds now , as you may notice from my Instagram and YouTube ( search MissCLX on both)



What do you think??

If you're interested in shopping for some new makeup yourself (or well anything) I'd reccomend shopping through quidco and getting the cash back. Sign up by clicking the button below and you'll receive £2.50 to get you started.

I love Quidco

Remember to hit follow if you aren't already. 

Charlotte says what?

Love Charlotte

Wednesday 13 May 2015

My Story

Hi lovely people,

So this week contained a very special day. May 12th was the recognised date for Fibromyalgia awareness.

Followers of my blog and social media links have been requesting I tell my story for a while now, i.e. , how I was diagnosed, treatments etc. Personally I just didn't feel ready to put it out there, but if there ever was a right time, I guess its now...

So yeah here's my video below for those who haven't already seen it explaining it all. I suggest grabbing a cuppa and making yourself comfy.

I try not to go into too much detail about medications etc because I'm not a doctor and different things work for different people. I don't feel it's my place to recommending or condemning how people manage their illness. This is just some of my story.

Nows the time to make this invisible illness visible.....Even if only for a little while.

Charlotte says what?

Lots of love

Saturday 9 May 2015

May so far ...

This month,so far, has been a month of so much and yet nothing, all at the same time.

There was a royal baby, a princess, given a totally suitabley amazing name Charlotte :-) a bank holiday where it pissed it down with rain while the country tragically tried to light their Barbeques. Oh and we all got a chance to have our say in the general election.

Like I said though it's also been a whole lot of nothing, because I've done absolutely fuck all but lie in bed dealing with the Fibro flare from hell. Thank god for Opiates and Netflix. I'm totally ready for season three of Orange is The New Black, FYI.

^^ for more pics follow my instagram

So the conservatives are back in power and by a majority. I for one didn't vote Tory and as the Internet hit the roof over their victory, I got it. But we live in a democracy and aren't we the ones who
Voted them in? The nation has spoken, we've all just gotta accept it.

On the subject of the princess well in the words of The Twitter comedians, heir done, spare done. This generation of royals is the most relatable and down to earth' Everyone called Charlotte managed to blag a free pizza, except for me and advertising companies went royal baby mad pushing products.

Barbeques and the bank holiday?  Well we are in England after all.

So that's pretty much it for may so far, what's going on where you are?

Lots of love


Saturday 2 May 2015


It's the beginning of May and currently a 3 day weekend...

May is typically a month of fibromyalgia awareness with the official day of awareness on May 12th.

Because this is obviously something close to my heart. I wanted to let you know what I'd be up to this coming month to mark the occasion.

I'm planning to upload a fair few videos relating to my illness, some serious, some funny and most, most likely a mixture of both.

Topics covered...

What is fibromyalgia?
How to explain it to other people?
Hiding your pain (drab 2 fab)
And a few more....
So head on over to YouTube and subscribe to keep up

I'm also, at the end of the month going to be hosting a give away to celebrate my blogs first birthday. So stay tuned for that ..more details will be released nearer the time.

Thankyou so much to every single one of you who takes the time to follow my posts, videos and social media. It means the world to me 

Until next time 

Lots of love

Charlotte says what?

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