Saturday 4 October 2014


Over the last month my health kind of took a turn for the worse. I've been in and out of the hospital and while I do try my best not to whinge and throw a pitty party, there have certainly been some of those moments. 

The majority of those moments have come from frustration. I'm fortunate enough to live in the UK where of course my healthcare is 'free' at the point of delivery. ( Thankyou NHS ). While the standard of care I receive is very high, it's the waiting around and miscommunication that occurs, that drives me up the wall. 

This current health issue started just over a month ago, while a month isn't that long and people are probably asking what I'm complaining about. For me it's been a month of being virtually housebound, being in and out, having tests, being poked and prodded and of course trying to cope with the pain.

This week I've had a big scan ( the video will be up soon ) and I'm now at home with a line in. Waiting...

I guess I should be used to it, I have various health issues including fibromyalgia. I'm one of those 'chroniclly ill' people and I have no doubt that those things complicate matters meaning things take longer.

It's hard to explain what it's like to be ill like such. My family are lovely and supportive and one way I've taken to describing how it feels is like this....

If a perfectly healthy person suddenly becomes ill, family and friends gather round at the hospital and at home to help, get well soon cards mount up on the mantel piece, it's a shock. If a 'spoonie' suddenly flares or developed something new, it's not like that. People have lives and jobs and just can't be there all the time. It's kinda lonely, almost like the novelty of you being sick has worn off...

Can anyone else relate to this?

Let me know 

lots of love 

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